The Following Information was taken from CHIN, the Congenital Heart Information Network.
Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.
Despite the fact that CHD affects approximately 1.8 millions families in the U.S., a relatively small amount of funding is currently available for parent/patient educational services, research, and support.
Congenital Heart Defect Fact Sheet
Sometime during early pregnancy, a baby's heart may not form properly, resulting in structural abnormalities known as Congenital Heart Defects. In many cases the cause is unknown.
It is estimated that 40,000 babies with Congenital Heart Defects (CHD) are born in the United States each year.
Although some babies will be diagnosed at birth, newborns are not routinely screened for CHD. The consequences of a late diagnosis can have serious, lifelong implications.**
CHD is the most frequently occurring birth defect, and is the leading cause of birth-defect related deaths. Nearly 1,800 infants with CHD die each year as a result of congenital heart defects
Some CHDs may require visits to a Pediatric Cardiologist. Others can be treated with medications or repaired with surgery and/or procedures. Complex defects may require several surgeries and are never really "cured".
The majority of patients born with congenital heart defects are now adults****, yet many adults with CHD are not receiving adequate ongoing care from trained specialists.**
* NHLBI
**Report of the National Heart, Lung, and Blood Institute Working Group on Research in Adult Congenital Heart Disease, 2006
***Congenital Heart Surgeons Society
Signs and Symptoms of Heart Defects
Parents should be alert to the following symptoms in infancy:
Tires easily during feeding (i.e. falls asleep before feeding finishes
Sweating around the head, especially during feeding
Fast breathing when at rest or sleeping
Pale or bluish skin color
Poor weight gain
Sleeps a lot - not playful or curious for any length of time
Puffy face, hands, and/or feet
Often irritable, difficult to console
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Some children with CHDs may not have any symptoms until later in childhood. Things to look for include:
Gets out of breath during play
Difficulty "keeping up" with playmates
Tires easily/sleeps a lot
Change in color during active play or sports (looks pale or has a bluish tint around mouth and nose)
Frequent colds and respiratory illnesses
Slow growth and weight gain/poor appetite
Complains of chest pain and/or heart pounding
If your child has two or more of these symptoms, talk to your pediatrician about a referral to a Pediatric Cardiologist.
Congenital Heart Defect Awareness Week is in February 2011.
For Helpful Resources, Check Out the Following Link: http://tchin.org/families/index.htm
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